SACRAMENTO, Calif. - Amit Vigoda, 11, was born with a rare congenital condition that makes his leg especially fragile.
The condition caused him excruciating pain and he would wake up in the middle of the night screaming for his mother.
“I awake to a familiar screech. ‘Mommmmmyyyy……HELP!’” Vigoda writes on the blog, Kveller.com. “’Mommmmmyyyy……I want to cut it off, I can’t stand it anymore…I hate my leg….make it stop,’ he hollers, eyes wide open yet not quite awake.”
Amit is in constant pain with a rod in his leg, and can only walk with crutches or hop on one foot or crawl. He’s had multiple surgeries as doctors have tried, among other things, “an inquisition-like procedure called external fixation–or in plain language, rods, nuts, and bolts through the bone, muscle, and skin," writes his mother.
Growing up, he was never allowed to jump or play any contact sports for fear his fragile leg will break, ABC NEWS reported.
But on April 10, he is scheduled to have a below the knee, Syme’s or ankle disarticulation amputation at Shriner’s Hospital for Children in Sacramento. Six weeks later, doctors will fit him with a prosthetic and three months later, he will be “up and running … well, walking,” his mom Zimra Vigoda, 45, told ABCNews.com. “He’s going to have a life with no limits.”
Amit told ABCNews.com, “I am a little bit afraid, but I have been through so much, it’s just like another surgery – except it will change my life. I won’t have any pain anymore and I can run and jump and play soccer.”
“He is still ready before I am, but his father and I are supporting him,” said Vigoda, who lives with her children, aged 6 to 15 in San Francisco’s Bay Area. “We’ll never know if this is the right thing."
When Amit was 7, his doctors recommended he have his leg amputated. But Vigoda confesses she wasn’t ready.
Doctors told the family, “It’s not your decision any more," she said. "When he was 2, it was your decision and now it’s not.”
On his own Tumbler blog , Amit shares his enthusiasm about upcoming surgery with his followers on a video: “I want to wear shorts to school because I want to get the kids ready, because in a couple of weeks I am going to come to school with a case without a leg. I can’t wait.”
Amit’s condition was discovered when he was born with a broken leg. Most children with the condition don’t have fractures until “a year or two later,” said his mother.
Doctors presented three options: let the leg heal by itself; initiate surgeries that would likely end in amputation; or amputate at the age of 1 or 2, so he could “lead a regular life,” said Vigoda.
“I almost fainted as I was holding this baby that had just been born and someone says take his leg,” she said.
In the end, they opted for multiple surgeries. In one procedure at age 9 or 10, he was in contracture for seven months, in a wheelchair, and then had to learn to walk again with a brace.
Vigoda, who works for the Israel-based Arab-Jewish Center for Equality, Empowerment and Cooperation, said she has “internalized” the idea of empowerment in her own life. “I hope that it has affected my son as well.”
“Achieving healing is less important than to be able to get an active life,” said Vigoda of Amit. “My kid has only one childhood.”